Screenshot Rare Disease Day💚💙💜. Our Freya Sunshine has a undiagnosed brain disease 💚💙💜  #rarediseaseday2026 💜💚💙  #rarerdisease #undiagnosed  #freyabookersjourney [...]

I recently visited New York City and it was so much fun! I got to see two shows. First, I [...]

Happy Rare Disease Week! I have oculocutaneous albinism type 4, which is one of the even more rare forms of [...]

Such a great moment and Freya has new sticker wallpapers ❤️

It's 2026 😱 Freya is tired now. Happy new year to all Love from Sunshine & mum and dad

It's not that I don't like compliments about surviving so many hard life experiences; they really mean a lot to [...]

One of my New Year's resolutions was to lose a bunch of weight. Well, we all know how these resolutions [...]

It's the end of invisible Disability awareness week! I am sort-of a person with invisible disabilities. Albinism--a lot of people [...]

Freya Update: the biggest inch-stone moment EVER!! Freya walking 😱 happy tears every time we watch this video from short [...]

On Saturday July 12, my parents and I decided to leave at 7am on our way to Canada.   It [...]

Getting used to a mobility aid I don't really want people to pity me, because a mobility aid actually means [...]

You cannot judge a book by its cover. That may be a phrase that we have heard but for most [...]

I love life. At 9 years old in “The World Book Encyclopedia”, I read that I would not live to [...]

Hi there, and welcome to my Positive Exposure blog! I’m so excited to be joining this amazing community and sharing [...]

I grew up just outside Chicago then moved to southern California. After undergrad, I headed across the country to complete [...]