PEARLS Posts
By: Freya
June 29, 2026
Omg I’m 15 years old today. You are amazing and bring soo much love (sunshine) to everyone who meets you. [...]
By: Amy
June 29, 2026
This weekend was my book release party for my children’s picture book, See Me. It was fun seeing people I [...]
By: Amy
June 23, 2026
CAMP FOR ALL I was in Texas with the Made a Masterpiece Foundation to attend Camp for All over President’s [...]
By: David
April 30, 2026
Our Beautiful Pearls Ambassador, David from Mexico: A must see Documentary... David dreams of being a pianist like his father, [...]
By: Rachel
April 28, 2026
I'm trying to figure out identity. Am I the same person who believed anything was possible and now feels that [...]
By: Rebekah
April 20, 2026
One Chapter Closed New Chapter Opens It’s been quite a busy five years of being a college student. But now [...]
By: Rachel
March 29, 2026
Having a list a mile long of mental health diagnoses takes so much time. I've been in therapy about 12 [...]
By: Freya
March 26, 2026
Freya tried out horse riding for the first time and it looked like she really enjoyed it: https://youtube.com/shorts/Tnrfwf8zriQ?feature=share IMG_6724
By: Freya
February 28, 2026
Screenshot Rare Disease Day💚💙💜. Our Freya Sunshine has a undiagnosed brain disease 💚💙💜 #rarediseaseday2026 💜💚💙 #rarerdisease #undiagnosed #freyabookersjourney [...]
By: Amy
February 24, 2026
I recently visited New York City and it was so much fun! I got to see two shows. First, I [...]
By: Rachel
February 10, 2026
Happy Rare Disease Week! I have oculocutaneous albinism type 4, which is one of the even more rare forms of [...]
By: Freya
January 1, 2026
It's 2026 😱 Freya is tired now. Happy new year to all Love from Sunshine & mum and dad















