On May 26th, Owen graduated from preschool.  I can't believe that after three years at his school he won't be [...]

It has been a busy spring for us, with traveling, sickness, and lots of excitement.  I wanted to share a [...]

I am writing this on February 4th, 2016.  It is exactly 5 years since we walked into the genetics office at [...]

I told you last time I would tell you about our trip to the beach.  It's nice to dream of [...]

Trick or Treat! Hey everyone.  October was a super busy month with a family vacation, sewing up all the Halloween [...]

This Summer Owen turned 5!  So we had to decide if we thought he was ready for Kindergarten or if [...]

Can we talk?  I'd like to share with you what it is like to be the mom of a four [...]

February 28th is rare disease day.  My Facebook news feed has been filled with images that say I heart someone [...]

Dear Owen Hello, Owen how has things been so far?  My name is Jehon.  My partner Otha, and I have [...]

Today, February 4th, 2015 marks an anniversary.  It was 4 years ago today that we got Owen's diagnosis of 18q-. [...]

I thought it would be fun to use some photos from when Owen was a baby for this post. Newborn [...]

I know it has been weeks since I have written a post.  It seems the plague has hit our home, [...]

I hope everyone had a wonderful holiday season, whatever way you celebrate we wish you joy.  As usual our days [...]

This year Owen met Santa Claus for the first time!  It may seem strange that he is 4 years old [...]

I hope everyone had a great Thanksgiving.  I know we did.  We enjoyed a big family meal with my husband's [...]