Amy's PEARLS Posts

  • By: Amy

    November 13, 2017

    On Halloween, I went to see my dermatologist. She specializes in diseases that affect the skin like XP/TTD. Everyone in [...]

  • By: Amy

    November 1, 2017

    Not Throwing Away My Shot! Do like Broadway musicals? I do! Last week, I got to go see Hamilton, An [...]

  • By: Amy

    October 9, 2017

    You already know that I LOVE Disney! Last week I got to go with my best friend to the Disneyland [...]

  • By: Amy

    September 21, 2017

    I had magical vacation! I went to Disney World! In Epcot, I went to the different world pavilions. I went [...]

  • By: Amy

    August 21, 2017

    This week I got to meet with Congresswoman Mimi Walters, who represents my city in the US House of Representatives. [...]

  • By: Amy

    August 4, 2017

    Hey, guess what, everyone! I got a new puppy. Her name is Oakley. I got her from the animal shelter [...]

  • By: Amy

    July 20, 2017

    On Saturday, I went to D23 Expo, which is like a big convention for Disney fans. I dressed like a [...]

  • By: Amy

    June 30, 2017

    One awkward thing that happens when you have a rare disease is that doctors like to take photos of you [...]

  • By: Amy

    June 23, 2017

    Last week I went to the National Institutes of Health (which is also called the NIH) near Washington, DC. It [...]

  • By: Amy

    June 10, 2017

    I went to a prom last night. I wore a sparkly dress that looked a little like mermaid tail. When [...]

  • By: Amy

    May 30, 2017

    This week I went to volunteer at a beach event for Best Day Foundation. I am one of the Ambassadors! [...]

  • By: Amy

    May 17, 2017

    I like to play different Pokémon games – some old ones and some new ones. I like to play because [...]

  • By: Amy

    May 17, 2017

    Have you ever read or seen "A Series of Unfortunate Events?" I've read three of the books, and watched both [...]

  • By: Amy

    May 8, 2017

    HAPPY BIRTHDAY TO ME! Yesterday was my birthday. First, I went to an art place to paint. I painted an [...]

  • By: Amy

    April 24, 2017

    Imagine being the only person you know who is like you. It can be kind of lonely! Last year, for [...]